Many of our DDX3X Children require assistance for day-to-day activities. Our group of active DDX3X parents have compiled a list of devices they’ve found useful for their children. Hopefully one of the devices will help your children!
The Bamboo Brace was created by physical therapists after searching for a dynamic elbow brace that encourages extension and promotes rather than interferes with motor skill development. Many of our girls have used these in particular for keeping their hands out of their mouths and hair.
SPIO – Stabilizing Pressure Input Orthosis
Assists patients with stability and proprioceptive deficits through deep pressure. Since deep pressure appears to be an important somatic input for balance and movement control, SPIO is designed to provide and enhance deep pressure sensory input around and toward the midline of the body to improve dynamic stability and postural activation.
A great bed for when your child is ready to move out of their crib but is not able to sleep in a typical bed. Will work with insurance.
The Safety Sleeper
A great bed for when your child is ready to move out of their crib but is not able to sleep in a typical bed. Not sure if they work with insurance.
Great stroller for older kids. Will work with insurance.
Phil & Teds Sport Stroller (double config) @JonSoini
Not ‘adaptive’ equipment but this stroller is amazing. It’s the size of a single stroller but holds 2 kids, or three in a pinch if the third wants to sit over the front wheel. We use it with our daughter for going to restaurants, she sits in it pulled up to a table and it got us through disneyland with all three kids painlessly.
Bikes for people with special needs. Your physical therapist can contact your local AMBUCS chapter to facilitate the process of getting a bike.
AFO’s (Ankle Foot Orthotics)
An AFO is a device prescribed by a doctor or therapist that supports the ankle and foot area of the body. They are used to control instabilities in the lower limb by maintaining proper alignment and controlling motion. AFO’s are custom fabricated, molded plastic device that encloses the back of the calf or ankle and bottom of the foot.
Firefly GoTo Seat (portable chair/harness) @JonSoini
We have this for our daughter, works well, right now she’s fighting it but it’s a great portable seat that has let us take her to restaurants and use regular chairs.
Firefly Upsee (walking harness) @JonSoini
Our daughter cannot walk or even sit up yet, this lets her get a feel for walking and going through the motions with a parent ‘driving’ the harness.
Soft Touch Sitter Chair @JonSoini
An angled chair w/ harness and mobile base for desk work or feeding. Insurance should help you with one of these as they’re durable equipment. Similar to Tumble Forms but a bit cheaper.
(DIY) Adaptive Table for Tumble Forms type sitter @JonSoini
Similar product: http://www.adaptivemall.com/smalltrayeasel.html
Sparrow used a table at therapy, when I looked it up it was over $650, so we built one instead. They’re super great if your kid is very limited on the mobility front.
(DIY) Weighted Rice Boppy Pillow @JonSoini
This is a custom boppy pillow placed over Sparrow’s legs to give her stability as she sits. It’s ~20lbs and used for short periods of time, with something to help her sit up against for back support. The linked photo shows the pillow in the green forest print, Sparrow is sitting up against a beige chair thingy. (Lauren Soini gets all the credit for this one)
(DIY) Oball Bottle @JonSoini
This one’s easy, get a 4″ Oball, cut two slits in it, and put in a 4oz bottle. For kiddos with limited motor control it makes grabbing a bottle possible. (Lauren Soini gets all the credit for this one)
Here is what I think are the exact products, but I’m guessing: