DDX3X NEWS & STORIES

A Small Request to the People Who Pray for My Child With Special Needs
Originally posted on The Mighty My daughter Emelyn’s first year was probably the toughest emotionally....
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Newly Discovered Rare Disease Unites Parents, Researchers
Originally published in The San Diego Union-Tribune by Bradley J. Fikes More than 100 people gathered in...
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Lucy Douglas
Our sweet Lucy was diagnosed in October 2016 with DDX3X. The pregnancy and delivery of Lucy was completely...
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Mason Platt
Mason was diagnosed in March 2017 with DDX3X and has been confirmed as ‘de novo’. He is now 7...
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Rose Michel
Rose was born the 3rd of May 2014 in Paris, France. We did not notice any initial developmental challenges...
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Recently Diagnosed with DDX3X?
Steps to connect, gather resources, and further DDX3X research If your child has just been diagnosed with...
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Nico & Josie
Nicole Marie “Nico” and Josephine Jude “Josie” Mueller are our identical twin daughters that were...
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Previous Family Days
Watch our announcements for 2020 Family Day! Watch video presentations from past Family Day events: 2019 San...
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Assistive Devices for DDX3X
Many of our DDX3X Children require assistance for day-to-day activities. Our group of active DDX3X parents...
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