DDX3X NEWS & STORIES

Finding Our Tribe Has Made All the Difference as We Navigate Our Daughter’s Disability
Originally posted on The Mighty I sit here, on a plane, traveling back from San Diego where our family has...
Read More

A Small Request to the People Who Pray for My Child With Special Needs
Originally posted on The Mighty My daughter Emelyn’s first year was probably the toughest emotionally....
Read More

Newly Discovered Rare Disease Unites Parents, Researchers
Originally published in The San Diego Union-Tribune by Bradley J. Fikes More than 100 people gathered in...
Read More

Lucy Douglas
Our sweet Lucy was diagnosed in October 2016 with DDX3X. The pregnancy and delivery of Lucy was completely...
Read More

Mason Platt
Mason was diagnosed in March 2017 with DDX3X and has been confirmed as ‘de novo’. He is now 7...
Read More

Rose Michel
Rose was born the 3rd of May 2014 in Paris, France. We did not notice any initial developmental challenges...
Read More

Recently Diagnosed with DDX3X?
Steps to connect, gather resources, and further DDX3X research If your child has just been diagnosed with...
Read More

Nico & Josie
Nicole Marie “Nico” and Josephine Jude “Josie” Mueller are our identical twin daughters that were...
Read More

Previous Family Days
Watch our announcements for 2020 Family Day! Watch video presentations from past Family Day events: 2019 San...
Read More