International DDX3X Day is on June 12. This year, we are aiming to raise $150,000 toward the goal of creating Centers of Excellence for DDX3X Syndrome. We need our community to come together to continue progress toward this goal. See below for all the ways to get involved and celebrate!
ATTEND THE FAMILY WEEKEND AT CHASTAIN FARMS
Registration is open for DDX3X Day festivities at Chastain Farms in Arkansas AND Madison Watkins will be performing live again this year on Saturday, June 11! The cost to attend is $40 per adult/$25 per child and includes meals and entertainment.
CREATE YOUR OWN FUNDRAISING PAGE
Families can create their own individualized pages to share their story and track their fundraising efforts.
REGISTER FOR THE 5K OR HALF MARATHON
This event is open to anyone so please help spread the word! Can’t participate on June 12? Choose the virtual option and complete the race anytime between now and DDX3X Day.
BECOME AN OFFICIAL RACE SPONSOR
Anyone can sponsor the race! It doesn’t matter if you are coming to Arkansas or participating virtually. Get excited, share the event with friends, grab some neighbors or ask your co-workers to sponsor you and your DDX3X child!
ORDER A DDX3X DAY SHIRT
Pre-order DDX3X Day shirts and have them shipped to either the event location or your home. If you are not attending the in-person event and are having the shirt shipped to your home, please use code shiphome2022 at checkout. If you are attending the event and would like to receive your shirt at the event please use code shiparkansas2022 at checkout.
4th Annual Family Weekend
Philadelphia, PA October 25-28, 2018 This event is open to families of children with DDX3X. It is a wonderful opportunity to connect with each other and the amazing doctors who are helping us learn more about this genetic disease as we search for a cure.
5th International DDX3X Day
Our First Annual DDX3X Family Day will be in San Antonio, Texas from November 14th to 17th, 2019.
Help further our efforts to find a cure for DDX3X Syndrome, and support those affected by it.Donate
Register today to help expand what we know about DDX3X Syndrome and stay connected to our community.Registry
We’re here to answer your questions and help connect you to our community.Contact