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X-WR-CALDESC:Events for The DDX3X Foundation Fund
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DTSTART;VALUE=DATE:20251016
DTEND;VALUE=DATE:20251019
DTSTAMP:20260603T231329
CREATED:20250317T223047Z
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UID:3906-1760572800-1760831999@ddx3x.org
SUMMARY:11th Annual DDX3X Foundation Scientific Conference
DESCRIPTION:Join the DDX3X community at The DDX3X Foundation’s 11th Annual Scientific Conference taking place October 16-18\, 2025 in Wilmington\, DE. This year’s event will be a mix of scientific content and family fun! \nThe conference will open on Thursday with a reception and dinner. On Friday\, attendees will hear the latest scientific updates from the doctors and scientists working on DDX3X Syndrome. Foundation Scientific Advisor and rare disease mom\, Kim Aldinger\, will moderate the conference and answer questions in layman’s terms. The conference will close with an off-site dinner. \nOn Saturday\, make time for family fun until mid-afternoon. A room block is available at Hotel DuPont. Sleeping rooms are available 10/15-10/19. All attendees are responsible for booking and paying for their own lodging. \nHotel Du Pont (Conference hotel) Room Rate: $269/night Deadline for booking: September 15\, 2025 Booking Link \n\n\n\n\nRegister
URL:https://ddx3x.org/event/11th-annual-ddx3x-foundation-scientific-conference/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250613
DTEND;VALUE=DATE:20250614
DTSTAMP:20260603T231329
CREATED:20250303T164515Z
LAST-MODIFIED:20250317T221746Z
UID:3874-1749772800-1749859199@ddx3x.org
SUMMARY:International DDX3X Day Family Fun Weekend
DESCRIPTION:ATTEND THE FAMILY WEEKEND AT CHASTAIN FARMS \nRegistration is now open for the International DDX3X Day Family Fun Weekend at Chastain Farms in Rogers\, AR! This year’s event will be held June 13-14. \nFor anyone who is new to the community or has not attended in the past\, this is a fun and relaxed weekend on the beautiful farm of one of the first individuals to be diagnosed! \nAshley Chastain and her family understand the tremendous joy – and challenges – that come with DDX3X Syndrome and have graciously opened their property for a safe\, fun\, and relaxing weekend for DDX3X families to enjoy. \nContact Us
URL:https://ddx3x.org/event/2025-international-ddx3x-day-family-weekend/
ATTACH;FMTTYPE=image/jpeg:https://ddx3x.org/wp-content/uploads/2025/03/474097751_1011155214376437_7408693451952468908_n-1.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260603T231329
CREATED:20210817T202101Z
LAST-MODIFIED:20240617T163636Z
UID:2114-1740700800-1740787199@ddx3x.org
SUMMARY:Save the Date - Rare Disease Day
DESCRIPTION:
URL:https://ddx3x.org/event/save-the-date-rare-disease-day/
ATTACH;FMTTYPE=image/jpeg:https://ddx3x.org/wp-content/uploads/2021/08/rare-disease.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241203
DTEND;VALUE=DATE:20241204
DTSTAMP:20260603T231329
CREATED:20220712T121252Z
LAST-MODIFIED:20240617T163528Z
UID:3180-1733184000-1733270399@ddx3x.org
SUMMARY:Save the Date - Giving Tuesday
DESCRIPTION:
URL:https://ddx3x.org/event/save-the-date-giving-tuesday-2/
ATTACH;FMTTYPE=image/jpeg:https://ddx3x.org/wp-content/uploads/2021/08/gt.jpg
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DTSTART;TZID=America/New_York:20241024T070000
DTEND;TZID=America/New_York:20241026T000000
DTSTAMP:20260603T231329
CREATED:20240913T151553Z
LAST-MODIFIED:20240913T151813Z
UID:3852-1729753200-1729900800@ddx3x.org
SUMMARY:10th Annual DDX3X Foundation Scientific Conference
DESCRIPTION:Join the DDX3X community at The DDX3X Foundation’s 10th Annual Scientific Conference taking place October 24-26\, 2024 in Wilmington\, DE. This year’s event will be a mix of scientific content and family fun!  \nThe conference will open on Thursday evening at 6:00pm with dinner and duck-pin bowling at Wilma’s (located 0.2 miles from the conference hotel). \n  \n\n\nRegister Here!\nOn Friday\, attendees will hear the latest scientific updates from the doctors and scientists working on DDX3X Syndrome. Foundation Scientific Advisor and rare disease mom\, Kim Aldinger\, will moderate the conference and answer questions in layman’s terms. The conference will close with a dinner reception at Stitch House Brewery (located 0.2 miles from the conference hotel). \nOn Saturday\, families are invited to the Buccini home in Chadds Ford\, PA for a hayride and family fun day! The Buccini home is located approximately 20 minutes from Wilmington and can be reached using Uber. \nRoom blocks are available at four hotels in Wilmington at different price points. Sleeping rooms are available 10/23-10/27. All attendees are responsible for booking and paying for their own lodging. \nHotel Du Pont\nRoom Rate: $249\nDeadline for booking: 10/2/24\nReservation link\n(Conference hotel) \nThe Westin Wilmington\nRoom Rate: $189\nDeadline for booking: 9/23/24\nReservation link\n(2.2 miles from the conference hotel) \nHomewood Suites\nRoom Rate: $184\nDeadline for booking: 10/2/24\nReservation link\n(1.3 miles from the conference hotel) \nThe Quoin\nRoom Rate: $349\nDeadline for booking: 9/23/24\nReservation link\n(0.4 miles from the conference hotel)
URL:https://ddx3x.org/event/3852/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240612
DTEND;VALUE=DATE:20240613
DTSTAMP:20260603T231329
CREATED:20230524T143225Z
LAST-MODIFIED:20240617T163355Z
UID:3422-1718150400-1718236799@ddx3x.org
SUMMARY:International DDX3X Day
DESCRIPTION:
URL:https://ddx3x.org/event/international-ddx3x-day/
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