The DDX3X Foundation Fund

10th Annual DDX3X Foundation Scientific Conference
2024-10-24 07:00 - 2024-10-26 00:00 (America/New_York)
Join the DDX3X community at The DDX3X Foundation’s 10th Annual Scientific Conference taking place October 24-26, 2024 in Wilmington, DE. This year’s event will be a mix of scientific content and family fun!
The conference will open on Thursday evening at 6:00pm with dinner and duck-pin bowling at Wilma’s (located 0.2 miles from the conference hotel).

Register Here!
On Friday, attendees will hear the latest scientific updates from the doctors and scientists working on DDX3X Syndrome. Foundation Scientific Advisor and rare disease mom, Kim Aldinger, will moderate the conference and answer questions in layman’s terms. The conference will close with a dinner reception at Stitch House Brewery (located 0.2 miles from the conference hotel).
On Saturday, families are invited to the Buccini home in Chadds Ford, PA for a hayride and family fun day! The Buccini home is located approximately 20 minutes from Wilmington and can be reached using Uber.
Room blocks are available at four hotels in Wilmington at different price points. Sleeping rooms are available 10/23-10/27. All attendees are responsible for booking and paying for their own lodging.
Hotel Du Pont
Room Rate: $249
Deadline for booking: 10/2/24
Reservation link
(Conference hotel)
The Westin Wilmington
Room Rate: $189
Deadline for booking: 9/23/24
Reservation link
(2.2 miles from the conference hotel)
Homewood Suites
Room Rate: $184
Deadline for booking: 10/2/24
Reservation link
(1.3 miles from the conference hotel)
The Quoin
Room Rate: $349
Deadline for booking: 9/23/24
Reservation link
(0.4 miles from the conference hotel)

Save the Date - Giving Tuesday
2024-12-03

Save the Date - Rare Disease Day
2025-02-28

International DDX3X Day Family Fun Weekend
2025-06-13
ATTEND THE FAMILY WEEKEND AT CHASTAIN FARMS
Registration is now open for the International DDX3X Day Family Fun Weekend at Chastain Farms in Rogers, AR! This year’s event will be held June 13-14.
For anyone who is new to the community or has not attended in the past, this is a fun and relaxed weekend on the beautiful farm of one of the first individuals to be diagnosed!
Ashley Chastain and her family understand the tremendous joy – and challenges – that come with DDX3X Syndrome and have graciously opened their property for a safe, fun, and relaxing weekend for DDX3X families to enjoy.
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11th Annual DDX3X Foundation Scientific Conference
2025-10-16 - 2025-10-18
Join the DDX3X community at The DDX3X Foundation’s 11th Annual Scientific Conference taking place October 16-18, 2025 in Wilmington, DE. This year’s event will be a mix of scientific content and family fun!
The conference will open on Thursday with a reception and dinner. On Friday, attendees will hear the latest scientific updates from the doctors and scientists working on DDX3X Syndrome. Foundation Scientific Advisor and rare disease mom, Kim Aldinger, will moderate the conference and answer questions in layman’s terms. The conference will close with an off-site dinner.
On Saturday, make time for family fun until mid-afternoon. A room block is available at Hotel DuPont. Sleeping rooms are available 10/15-10/19. All attendees are responsible for booking and paying for their own lodging.
Hotel Du Pont (Conference hotel) Room Rate: $269/night Deadline for booking: September 15, 2025 Booking Link

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12th Annual DDX3X Foundation Scientific Conference
2026-10-22 - 2026-10-24
Register for the 12th Annual DDX3X Foundation Scientific ConferenceOctober 22-24, 2026 | Wilmington, DE
Registration and housing are now open for the 2026 Scientific Conference! This year’s event will be a mix of scientific content and family fun!The conference will open on Thursday with a reception and dinner.On Friday, attendees will hear the latest scientific updates from the doctors and scientists working on DDX3X Syndrome. The conference will close with an off-site dinner.On Saturday, make time for family fun until early-afternoon.A room block is available at Hotel DuPont. Sleeping rooms are available 10/21-10/25. All attendees are responsible for booking and paying for their own lodging.Hotel Du Pont (Conference hotel) Room Rate: $279/nightDeadline for booking: September 14, 2026Booking Link

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