Jena became part of the DDX3X family in June 2019 when her daughter was diagnosed at 10months old. After her diagnosis, advocating for Allie and her medical needs, while educating providers, became her priority. Allie is now a joyful three year old! The DDX3X Foundation has been an asset as Jena and her husband have navigated this journey as a family. She is passionate about raising community awareness and providing opportunities for advancing the growth of the foundation and research.