Rose Michel looking very cute

Rose Michel

Rose was born three weeks early on May 3, 2014, in Paris, France. We did not notice any initial developmental challenges until around nine months when she wasn’t sitting independently and seemed sensitive and stressed. At that point, we turned to our neurological team answers. After several rounds of testing without any answers, we turned to whole exome testing in February of 2017 which revealed the DDX3X gene mutation. Rose is in therapy weekly—she crawls, stands, says several words, and understands everything we say. She’s very happy, sociable yet quiet, observant, and easy going. Our doctors are quite confident regarding her development. Not every day is easy but love and hope are our guides and we are positive and confident for her future. Our unique and special Rose brings us so much love, kindness, and happiness.