Virginia Frances in her swimsuit enjoying the beach

Virginia Frances

Our sweet Virginia was born in March of 2005. After a completely normal pregnancy, she was breech, so the doctors flipped her and induced delivery. Virginia was very colicky from the start, and was late with all of her milestones. After 10 years of “doctor shopping” at all the “best” hospitals up and down the east coast, we ended up at the Clinic for Special Children in Strasburg, PA. We did genome sequencing through Gene Dx and the doctors determined Virginia has the DDX3X mutation.
Virginia is the heart and soul of our family. She loves her 3 siblings immensely and has made us all better people. She continues to make great progress through lots of therapy at her amazing school. She is learning to read and write. Physically, Virginia is doing very well. She loves horses more than anything, and prefers to spend all her free time at the barn. She brings us all great joy, and we are excited and positive about her future.