ABOUT YOUR CHILD

Please take a moment to fill out this form. The information in the form is critical to helping researchers learn about and understand the DDX3X gene mutations that affect our children.

Your participation could help all of our children.

Please contact us with any questions about the form.


























This is a study that will follow patients with the condition over time to better understand the many features and changes that can take place over time, and can help researchers understand which features can be targeted for improvement with a therapy