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We’re here to answer questions, connect people, and help all families affected by DDX3X Syndrome.
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FAQ
Frequently Asked Questions
The information is handled according to the Terms and Conditions . In short, the information is compiled together to create research-friendly data for medical and genetic researchers.
Here are a few things you can do to get involved:
- Please fill out the DDX3X Syndrome registry so we know how to reach you.
- Join our Facebook group.
- Read Recently Diagnosed With DDX3X Syndrome? and take action.
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Yes! Check out this awesome summary from Unique (rarechromo.org).