The DDX3X Foundation is a nonprofit organization founded in 2015 to find a cure for DDX3X syndrome. As part of our mission, the Foundation will support existing research, education, and treatment programs focused on DDX3X syndrome. The Foundation has three primary functions: research, connecting families, and raising awareness.
Formed by parents of DDX3X children, we understand the challenges associated with raising a child with a DDX3X syndrome. Many of the families affected by DDX3X went years without knowing the cause of their child’s delays. We exist to connect and support you.