Annabelle was diagnosed in January of 2016 at the age of ten. She is a fraternal twin and we suspected from the day she was born a full pound and a half lighter than her sister that something was not right. Annabelle achieved all of her milestones late, learning to walk at two but she never acquired language. Today, she communicates with a talker in short phrases. Annabelle also suffers from abnormal sleep patterns as do most DDX3X children. She has severe cognitive deficits, major sensory issues, and fine motor deficits. She attends a highly specialized school and will likely require around the clock care for the rest of her life. She loves swimming, jumping on her trampoline, books, swinging and she adores her siblings. We are extraordinarily grateful for our DDX3X family, the researchers dedicated to finding a way to improve our children’s lives and those who have provided financial support to the DDX3X Foundation along the way.

Annabelle

Sonya
Sonya has the unique ability to see beauty and amazement in everything around her. Sonya is kind,...
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Scarlett
Scarlett was diagnosed with DDX3X in October 2018. It was the final piece of our puzzle after six years...
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Hadley
Hadley is a determined and joyful girl whose excitement for life rubs off on everyone around her. There...
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