Recently Diagnosed?
Steps to Connect
If your child has recently been diagnosed with DDX3X Syndrome or you just found this site and want to get involved in this community, here are a few steps to get started.
Recent News
DDX3X-Related Neurodevelopmental Disorder – Research Paper
Learn more via the paper here. GeneReviews® chapters are owned by the University of Washington. Permission is hereby granted to reproduce, distribute, and translate copies of content materials for noncommercial […]
Chan Zuckerberg Initiative to Fund 30 Patient Groups, Aiming to Build a Model for Tackling Rare Disease
Originally posted on STAT by Rebecca Robbins on February 3, 2020 SAN FRANCISCO — When Facebook founder Mark Zuckerberg and his spouse Dr. Priscilla Chan in 2016 vowed to get all diseases […]
Funding Available – Request For DDX3X Research Applications
Request for DDX3X Research Applications The DDX3X Foundation, a nonprofit organization dedicated to supporting research to advance theunderstanding and treatment of DDX3X mutations, announces the availability of funds to support […]
