Hadley is a determined and joyful girl whose excitement for life rubs off on everyone around her. There is no song out there that Hadley couldn’t make up a dance to. She also loves water, maps, and interacting with just about anyone. Hadley has been receiving speech, occupational, and physical therapy since she was 18 months old. No matter how slow progress may be at times, Hadley never gives up on herself. One of Hadley’s strengths is her ability to imitate modeled behaviors or actions around her. Her parents recognize that Hadley maximizes her potential when she is afforded as many opportunities as possible to learn alongside her peers.
After three years of searching for answers, receiving the DDX3X diagnosis brought an amazing community along with it for Hadley and her family. Finding acceptance, support, and resources through the DDX3X community has been a true gift.
Braylee was born February 2, 2014. Pregnancy was normal, but she decided to make her appearance at 36 weeks. She spent 3 weeks in the NICU due to failure to thrive, low blood sugar, breathing abnormalities and two different CHDs.
We finally got her diagnosis in November 2015. We have since become part of an amazing group of families and caretakers. Lena recently celebrated her 2nd birthday by learning how to crawl!
Kate is globally developmentally delayed, non-verbal and has autistic characteristics. She attends school in a severe/profound program where she continues to make slow but steady progress.
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