Schedule and Agenda
We are excited to announce that due to the Chan Zuckerberg grant we received in 2020, The DDX3X Foundation is able to subsidize the majority of costs for families this year.
Attendance for DDX3X children, siblings, and two parents/caregivers is complimentary and includes dinner on Thursday, November 11, all meals and complimentary babysitting services during the conference on Friday, November 12 as well as two nights’ room, fees, and taxes at the conference hotel.
All attendees are responsible for their own flights and travel to/from the conference.
Email Chelsey at [email protected]
Agenda at a Glance
Thursday, November 11
Welcome Dinner | 6:00pm – 8:00pm
Friday, November 12
*Babysitting will be provided during the conference on Friday by licensed and insured caregivers who have experience working with special needs children.
Breakfast | 8:00am – 9:00am
Scientific Conference | 9:00am – 5:00pm
Dinner | 6:00pm – 8:00pm
Saturday, November 13
Group visit to Clearwater Marine Aquarium | 10:00am – 12:00pm
The meeting will be hosted at the Hyatt Regency Clearwater Beach Resort and Spa.
*Unfortunately, the deadline to book your hotel reservation has passed.
Saturday’s group activities include a trip to Morgan’s Wonderland in the morning and the Riverwalk Boat Cruise in the late afternoon. Morgan’s Wonderland will require transportation, however, all other activities are walkable. There will be an additional charge for these activities. Saturday dinner is not planned.
4th Annual Family Weekend
Philadelphia, PA October 25-28, 2018 This event is open to families of children with DDX3X. It is a wonderful opportunity to connect with each other and the amazing doctors who are helping us learn more about this genetic disease as we search for a cure.
5th International DDX3X Day
Our First Annual DDX3X Family Day will be in San Antonio, Texas from November 14th to 17th, 2019.
Help further our efforts to find a cure for DDX3X Syndrome, and support those affected by it.Donate
Register today to help expand what we know about DDX3X Syndrome and stay connected to our community.Registry
We’re here to answer your questions and help connect you to our community.Contact