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Save the Date – Giving Tuesday

Schedule and Agenda

Past Events

4th Annual Family Weekend

Philadelphia, PA October 25-28, 2018 This event is open to families of children with DDX3X. It is a wonderful opportunity to connect with each other and the amazing doctors who are helping us learn more about this genetic disease as we search for a cure.            

5th International DDX3X Day

Our First Annual DDX3X Family Day will be in San Antonio, Texas from November 14th to 17th, 2019.

7th Annual Scientific Conference

We are excited to announce that due to the Chan Zuckerberg grant we received in 2020, The DDX3X Foundation is able to subsidize the majority of costs for families this year.


Help further our efforts to find a cure for DDX3X Syndrome, and support those affected by it.



Register today to help expand what we know about DDX3X Syndrome and stay connected to our community.



We’re here to answer your questions and help connect you to our community.


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