Philadelphia, PA October 25-28, 2018 This event is open to families of children with DDX3X. It is a wonderful opportunity to connect with each other and the amazing doctors who are helping us learn more about this genetic disease as we search for a cure.
International DDX3X Day is on June 12. This year, we are aiming to raise $150,000 toward the goal of creating Centers of Excellence for DDX3X Syndrome. We need our community to come together to continue progress toward this goal. See below for all the ways to get involved and celebrate! ATTEND THE FAMILY WEEKEND […]