4th Annual Family Weekend

Philadelphia, PA October 25-28, 2018 This event is open to families of children with DDX3X. It is a wonderful opportunity to connect with each other and the amazing doctors who are helping us learn more about this genetic disease as we search for a cure.            

5th International DDX3X Day

Test Venue test, 333, city, DE

Our First Annual DDX3X Family Day will be in San Antonio, Texas from November 14th to 17th, 2019.

7th Annual Scientific Conference

Hyatt Regency Clearwater Beach Resort and Spa 301 S Gulfview Blvd, Clearwater Beach, FL

We are excited to announce that due to the Chan Zuckerberg grant we received in 2020, The DDX3X Foundation is able to subsidize the majority of costs for families this year.

International DDX3X Day

International DDX3X Day is on June 12. This year, we are aiming to raise $150,000 toward the goal of creating Centers of Excellence for DDX3X Syndrome. We need our community to come together to continue progress toward this goal. See below for all the ways to get involved and celebrate!   ATTEND THE FAMILY WEEKEND […]