DDX3X NEWS & STORIES

Chan Zuckerberg Initiative to fund 30 patient groups, aiming to build a model for tackling rare diseases
Originally posted on STAT by Rebecca Robbins on February 3, 2020 SAN FRANCISCO — When Facebook founder Mark...
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Sonya
Sonya has the unique ability to see beauty and amazement in everything around her. Sonya is kind, bright,...
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Scarlett
Scarlett was diagnosed with DDX3X in October 2018. It was the final piece of our puzzle after six years of...
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Hadley
Hadley is a determined and joyful girl whose excitement for life rubs off on everyone around her. There is no...
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Elizabeth
Elizabeth is a happy and fun five-year-old girl who’s always up for an adventure. She makes friends...
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Genetic testing solved Stilwell family’s medical mystery
STILWELL, KS (KCTV) — “Everything’s fine, everything’s normal.” That’s what a Stilwell family...
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Annabelle
Annabelle was diagnosed in January of 2016 at the age of ten. She is a fraternal twin and we suspected from...
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Strong community drives support for DDX3X research
Originally posted on Duke University’s Regeneration Next Mariah Hoye, a Regeneration Next Fellow and...
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Finding Our Tribe Has Made All the Difference as We Navigate Our Daughter’s Disability
Originally posted on The Mighty I sit here, on a plane, traveling back from San Diego where our family has...
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